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justine's diary

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Justine's Diary



 




March 2006
29 MARCH 2006 - 7.45 pm
Justine has just sent this handwritten message out from her ward:-

" Hello again!

I want to wish my friends Den and Gav a Happy Wedding in 2 weeks time.  I was really hoping to be there - but think my stay is still months more here.   Jon may make it - so one half of us will be there.  Have a great day & congratulations.

I was also upset loosing my friend Julie - all my love goes to her family.

I'm doing OK...................good and bad moments.....................but hopefully tonight I can have some joghurt!?

I also want to mention my gorgeous fiancee Jon.   He has been here with me every day - morning - afternoon and night.  

 I just can't wait until I have new lungs - and can then marry my sweetheart.   'Jon you have been amazing and I love you very much - you are a star'.

'Also big thanks to all my family for continued support.  

To my Mum and Dad - I love you both very much - thank you for being there for me too'

Speak soon and everyones support has been great.

Bye everyone  xxxx  "


29 MARCH 2006 - Midday

Justine was very saddened yesterday evening (see Latest News Section) but oater when a valve was fitted so she could talk she gave her Dad this message to post.  She was to tired to write anything herself.

" I am so very sad to loose Julie Teed who was a very good friend living in Guernsey.   We wrote weekly.

My heart goes out to the rest of her family and I am happy to have known Julie - a lovely, lovely woman."

27 MARCH 2006

Justine has written the following message this afternoon:

"Hello everyone,

I am out of the isolation unit with clearance of the MRSA, I am now in the main Intensive Care ward.  Things have seemed to improve in the last week.

I am off the full ventilator and have 2 other breathing machines which are much lower grade (gentler) and my breathing has improved.  One of the machines when connected lets me have sips of water - "a dream".  I even had a mouthful of vanilla ice cream last night - "what a treat"

I tried to walk again today - and did a couple more steps than last time. I'm not as wobbly - but its still going to be a slow progress.

I heard that there is also talk on me being moved to E-Ward later this week, this is the transplant ward.

I feel a bit happier, more relaxed, but I still look forward to being normal again.

I love all the messages - please realise they keep me smiling and give me hope.

I've been through so much - it even surprises me - and what an ordeal I've been through.

Well you all know what I look forward to....................drinking, eating and talking.............................For those who know me you would never believe how quiet I am!!!!!!!!.......................Ha Ha.

Thanks everyone   x x x"

23 MARCH 2006

Justine has written the following message:

"Hello everyone

Been a little while.  I have had some good and some really bad days.

Have been told today I need to clear my chest infection before re-considered for a transplant.

I'm really enjoying my tastes of fruit squash on my tongue and the minute sips of water that I'm allowed - this is like heaven.

Today they are trying me on a lower ventilation programme - so I'm slowly going in the right direction.

I need to start to relax and enjoy my time here - as I could be here for a while ; weeks even months and I have to accept that.   Not that I have any choice. Now I'm just craving for a glass of water!

Thanks for all messages and cards. Keep them coming in and send cards or letters to me at my parents address then I can try to write back if I can.

Thanks everyone  x x"

Note: Justine will need to be stronger before she can write but she does intend to reply to all of you just as soon as she can)

15 MARCH 2006

Justine has written the following message:

"Had a scare yesterday when inside of lung collapsed. Doctors sent me to sleep plus drugs to paralyse me. Another chest drain was inserted on my chest. I've lost count now how many left "Freds" I've had...8 or 9...

Anyways...sitting in chair now writing this. Done some physio work + cycling machine for lower legs today.

Feel ok...just want to come off vent machine still. Allowed tiny sips of water through a straw now. Also flavours on the tounge - but no swallowing - I have about 5 different cordials and mix and match. I taste on a pink sponge which I squeeze excess dry then swab on tounge.

Doctor also starting me on anti-depressants too - which I have been on before + was on before all this saga.

Hello to everyone as well and thanks 4 all the messages. Dad has brought them in + I've read every one - they keep me smiling. Big thanks to Olly Nash - almost daily + gifts / photos in the post. Thanks to other gifts that I have received too. All make me smile.

To Trevor O'Sullivan - guess when I get to meet you it will be for food!

To "Yorkie Bar" - thanks for your letter. It would be nice to write to people. If you email my brother under "contact us" on my website with your address - then I will write. I'll ask for envelopes etc.

Gosh I've written a lot - hands a bit shaky now. Really want to come home and be normal again but know I still have time to wait.

I miss everyone + Chelmsford buddies, Potters Bar buddies + all other buddies.

x x"

 

11th MARCH 2006

Justine has written the following message:

" Hallo everyone.  Thanks again to my Dad who is typing this for me.

I'm attached to a Spaghetti Junction.  On a ventilator - probably will be on this for weeks to help me breathe.

Getting stronger daily, a slow progress.

Can't believe how long I've been here & how ill I was during my sedation period.

Wanting to get better and wean myself off ventilator..............oh the joys to be able to eat, drink and talk again!!!!  Something to look 4ward too.

Great to see Jon every day and he wants me to start planning our wedding - so now I have something to work on.

Well thats all 4 now.

Miss everyone and eating/drinking and talking  xxx"

8 March 2006

Justine has written the following message:

" Hallo everyone.  Thank you to my Dad who is typing this for me.


I'm on a ventilator to help me breathe - and I still can't talk or eat.   So right now I have food on a drip.

Its hard - but I have good and bad days and I reckon it will take weeks yet to progress.

Miss all u crazy lot out there & can't wait 4 Wimpey Burger + Strawberry Milkshake  xxx"

See Latest News for medical update

6 March 2006
Justine has written the following message:

" Today I have found out how long I have been in hospital 4 - was shocked. Think will be here 4 a while as still recovering - its a long haul. I went out of bed 1st time 4 chair today - legs were shaky. Miss all my friends very much + chatting on MSN ...he he... x x"