In April 2005 Justine was diagnosed with Lymphangioleiomyomatosis (LAM). Lam is one of the rarest diseases known to man, of unknown origin and affecting little over one in a million people. It is currently without a known cure.

This website has three main objectives:

(1) To tell Justine’s inspirational story as she fought LAM and to offer encouragement and hope for those suffering and affected by LAM;

(2) To promote organ donation; and

(3) To be a resource for updating family and friends of Justine and the wider community.

Justine’s story is told through differing perspectives including: extracts from her personal diary; worldwide media coverage on television, newspapers and radio; news bulletins documenting her medical journey; a public guestbook with messages worldwide; and other photos and media.

On this website you can learn about Justine's driving force, passion and ambitions.

You will also find on this website useful links to the charitable and other organisations where further information regarding LAM can be found, such as, for example, the UK Lam Charity LAM Action.